Nothing like having a late diagnosis for your son who has been going thru very difficult times, to re-arrange priorities.  His diagnosis? Mosaic Trisomy 13.  He is rare, very very rare.  Few live as long as he has and he has a healthy heart to boot, which is even more rare yet.  But, what he suffers from is devastating.  He struggles with several mental disorders.  Perhaps I will write more later. Perhaps some brighter stuff.  Pray for us.